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Econometrica Explores ESRD Treatments From the Patient Perspective

Econometrica Explores ESRD Treatments From the Patient Perspective

Econometrica released a new issue brief exploring treatment options for end-stage renal disease (ESRD) and their problems from the patient perspective. In partnership with LMI and the American Association of Kidney Patients, the ESRD Brief: Patient Perspectives discusses dialysis treatments and kidney transplantation and highlights the implications for patients of the ESRD Treatment Choices (ETC) Model. The ETC Model, rolled out by the Centers for Medicare & Medicaid Services, aims to encourage greater use of home dialysis and kidney transplants for Medicare beneficiaries with ESRD.

ESRD Patient Perspectives v4 5 pdf

ESRD Brief: Patient Perspectives

The Problem From the Patient Perspective

Remembering the Section 504 Sit-In

Sections 504 and 508 of the Rehabilitation Act of 1973 are key to protecting the rights of people with disabilities. Combined, they aim to ensure people with disabilities can access any program or activity receiving Federal funds and to eliminate barriers in IT and encourage the development of technology to achieve these goals.

April 5 marked the 44th anniversary of the Section 504 sit-ins. The 1977 sit-ins resulted from years of frustration at the slow pace of regulations and marked a turning point in the Nation’s push for regulations protecting the rights of people with disabilities.

Section 504 passed into law as part of the Rehabilitation Act of 1973, one of the first U.S. federal civil rights laws offering protection for people with disabilities. It set up the groundwork for all future legislation protecting people with disabilities, such as the Americans with Disabilities Act (ADA).

Though the law said “no otherwise qualified handicapped individual in the United States shall solely on the basis of his handicap, be excluded from the participation, be denied the benefits of, or be subjected to discrimination under any program or activity receiving federal financial assistance,” the Government was slow to create and enforce regulations enforcing the law. The law would prohibit any entity receiving Federal funding, such as airports, post offices, universities, and Government facilities, from discriminating against anyone because of a disability.

No regulations were issued from 1973 to 1977, despite attorneys in the Office for Civil Rights drafting regulations and sending them to the Secretary of Health, Education, and Welfare (HEW) to publish for public comment. Guidelines from HEW would become guidelines for other Federal agencies, so this was important step. Disability rights organizations advocated for the regulations and staged protests and grassroots campaigns to see their passage. However, concerns about costs and enforcement, and pushback from covered entities such as hospitals and post offices, slowed passage.

But by 1977, frustration erupted. HEW Secretary Joseph Califano was tasked with studying the Section 504 regulations but established a task force that did not include anyone with a disability. National protests were organized.

The 504 Sit-In began April 5, 1977. Disability activists demonstrated at HEW offices nationwide, demanding the Section 504 regulations be signed. Sit-ins lasted at several of the offices, most notably in San Francisco. While many of the protests dispersed after a few hours, the peaceful protest in San Francisco lasted 25 days.

Persistence paid off, however, as Califano signed the regulations on April 28, 1977. The grassroots campaigns and ongoing protests showed that people with disabilities were not to be ignored, and forged partnerships that would later draft Federal laws, such as ADA, that provided for nondiscrimination on the basis of disability.

Kitty Cone was one of the organizers of the San Francisco protest. You can find a good inside account of the events here:

Section 504 passed into law as part of the Rehabilitation Act of 1973, one of the first U.S. federal civil rights laws offering protection for people with disabilities. It set up the groundwork for all future legislation protecting people with disabilities, such as the Americans with Disabilities Act (ADA).

Econometrica Will Continue Regulatory Work for BSEE

The U.S. Bureau of Safety and Environmental Enforcement (BSEE) recently awarded Econometrica a multiple-year contract to provide expert assistance and technical support for the economic analyses associated with BSEE regulatory, research, inspection, and enforcement activities.

The results of any work performed will help BSEE, part of the U.S. Department of the Interior, evaluate the economic impact of its regulations for Federal actions designed to increase environmental and safety protection on the Outer Continental Shelf (OCS).

This new award continues economic analysis work Econometrica began under a previous contract with BSEE. Under that contract, Econometrica provided BSEE with regulatory impact analyses and regulatory flexibility analyses for Notices of Proposed Rulemaking (NPRMs) and Final Rulemakings. BSEE rulemakings supported by Econometrica include:

  • Oil and Gas Production Safety System (RIN: 1014-AA37)
  • Blowout Preventer (BOP) and Well Control (RIN: 1014-AA39)
  • Exploratory Drilling on the Arctic OCS (RIN: 1082-AA01)

Econometrica provided BSEE with regulatory impact analyses and regulatory flexibility analyses for Notices of Proposed Rulemaking (NPRMs) and Final Rulemakings. BSEE rulemakings supported by Econometrica

Census Releases Brief About Childhood Disability in the United States

The U.S. Census Bureau recently released a brief exploring childhood disability in the United States.

The brief, Childhood Disability in the United States: 2019, uses data from the 2008 and 2019 American Community Surveys to identify the prevalence of disability among children as well as breaks down disability rates by demographic and socioeconomic characteristics.

“The concept of childhood disability encompasses children with various physical, mental and/or emotional conditions that pose limitations to certain activities or tasks,” the Census Bureau said in a statement.

According to the brief, 4.3 percent of children had a disability in the United States in 2019, up from 3.9 percent in 2008, and the most common type of disability was cognitive difficulty. The data also showed regional differences in disability prevalence, with the highest rates in the South and Northeast and the lowest rates in the West.

More information can be found at:

According to the brief, 4.3 percent of children had a disability in the United States in 2019, up from 3.9 percent in 2008, and the most common type of disability was cognitive difficulty.

CMS Updates Data Snapshot Showing COVID’s Impact on Beneficiaries

The Centers for Medicare & Medicaid Services recently released an updated data snapshot detailing the impact of the COVID-19 pandemic on Medicare beneficiaries. Among the findings:

  • Medicare fee-for-service spending associated with COVID hospitalizations rose to $10.3 billion.
  • The rate of cases in rural areas (4,271 per 100,000) outpaced those in urban areas (4,151 per 100,000) for the first time.
  • The pandemic continues to hit certain populations harder than others, including American Indian/Alaska Native beneficiaries (2,393 per 100,000), African-American beneficiaries (1,937 per 100,000), and Hispanic beneficiaries (1,617 per 100,000).

“Although the snapshot data suggests COVID-19 continues to impact certain populations disproportionately, it also points to the importance of COVID-19 vaccines and other opportunities for prevention and treatment in disadvantaged groups.”

The snapshot includes data for services provided from January 1, 2020, to December 26, 2020.

More information can be found here:

The pandemic continues to hit certain populations harder than others, including American Indian/Alaska Native beneficiaries, African-American beneficiaries, and Hispanic beneficiaries.

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