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NIH Publishes Consensus Study Report: Measuring Sex, Gender Identity, and Sexual Orientation

NIH Publishes Consensus Study Report: Measuring Sex, Gender Identity, and Sexual Orientation

As the visibility of transgender and intersex populations increases in the public awareness, there is also a need to address the challenges of accurately understanding and communicating the complexities of sex, gender identity, and sexual orientation in research. At the request of the National Institutes of Health (NIH), a committee was established by the National Academies of Sciences, Engineering, and Medicine to study current methodologies related to sex, gender, and sexual orientation.

The resulting recently released report, Measuring Sex, Gender Identity, and Sexual Orientation, provides specific recommendations for more robust practices in collecting data on sex, gender, and sexual orientation in order to more accurately capture the complexity of these concepts and people’s experiences within the LGBTQI+ and other sex, gender, and sexual orientation minority populations.

The guiding principles detailed in the report promote accurate representation in data collection instruments, precise terminology, ability for people to self-identify, collection only of necessary data, and maintaining privacy and confidentiality.

The report advocates for standardized terminology as a foundation for data collection. Sex and gender are often merged into a single concept, which is inaccurate, non-inclusive, and does not capture the full complexity of people’s experiences and identities. The report defines several terms related to the concepts of sex and gender, including the intertribal term “Two-Spirit,” which is reserved for use by Indigenous people as an English approximation of similar but culturally specific concepts.

The report indicates that a two-step gender measure is preferred, including both the sex assigned at birth and current gender identity. It is also important to note, according to the report, that the sex assigned at birth may not accurately reflect a person’s biological sex as intersex traits often are not discovered until later in life. The report recommends a separate measure of intersex status, not simply a third option when recording sex.

While sexual orientation is a fairly widely studied concept at this point, it is dependent upon accurate representation of sex and gender identity, so data related to sexual orientation may change as standardized practices increase accuracy of all three concepts.

The full report is now available in prepublication with the final edited version coming in the near future. As researchers adopt these improved practices, the improved data quality can help the NIH and other organizations more fully understand the challenges LGBTQI+ populations face in accessing equitable treatment in health care and other areas of their lives.

Clinical Practice Team Adds to Econometrica’s Capabilities

Clinical Practice Team Adds to Econometrica’s Capabilities

BETHESDA, MD – Econometrica has formed a dedicated Clinical Practice Team consisting of healthcare professionals from a variety of healthcare disciplines. The addition of this team augments the technical capabilities of Econometrica’s Health Group to provide expertise in training, information diffusion, health research, quality measure development, monitoring, evaluation, technical assistance, and data analytics.

The team will be led by Dr. Kristie McNealy and includes a geriatric nurse practitioner and two registered nurses with clinical experience spanning primary care, acute care, hospice, home health, and rehabilitation settings.

The Clinical Practice Team provides clinical and health operations insights to a range of Econometrica’s projects, including supporting the Centers for Medicare & Medicaid Services (CMS) in selecting clinically relevant quality measures for the Bundled Payments for Care Improvement Advanced model and developing training content around patient assessment and coding for nurses and quality staff working in post-acute care settings. Team members also provide valuable perspective on the challenges providers face in delivering and coordinating care in different settings and the barriers beneficiaries experience attempting to access the care they need.

“The Clinical Practice Team will continue to support our various healthcare projects as well as allow Econometrica to support new projects in the areas of medical records abstraction, electronic health records, and clinical consultation,” President/CEO Cyrus Baghelai said. “We look forward to offering our clients and partners these expanded services.”

With healthcare and related industry trends constantly evolving, Econometrica’s experts use a variety of research and evaluation methods to provide innovative approaches for each client. In recent years, our Health Group, has developed tailored technical assistance plans for CMS, including working with States in accessing and using CMS data sources under the State Data Resource Center contract; has had more than 250,000 provider impacts based on trainings focused on understanding and complying with the IMPACT Act on the Post-Acute Care Training contracts; and has had 3 quality measures endorsed by the National Quality Forum under our Programs of All-Inclusive Care for the Elderly contract.

About Econometrica

Founded in 1998, Econometrica is a research and management organization in Bethesda, MD, established to provide public- and private-sector clients with customized program support services. Econometrica works with multiple agencies to provide high-quality, cost-effective analyses, modeling, and economic evaluations. The company consistently receives exceptional scores from its clients and believes in three principles: technical capabilities, happy customers, and business development.

With healthcare and related industry trends constantly evolving, Econometrica’s experts use a variety of research and evaluation methods to provide innovative approaches for each client.

Press Contact

Jonathan Fusfield